Forgot to post this, things have been crazy since Thanksgiving getting ready for all of the holidays. I am happy to report that after 3 months of DexCom, I have dropped my HBA1C a full point. I initially purchased the DexCom to help me lower my HBA1C after losing focus on my diabetes, and to help me prevent hypos.
I have almost reached both goals: nary a hypo in sight, and the HBA1C is down from 8.3 to 7.3. Granted I've got a ways to get below my desired goal of 6.0, but I think I can make it; I've started Symlin along with my pump (more to report on that later). For me, I would not have gone on Symlin without CGM. This stuff really stomps on your BG and keeps it down low. I've been through some roller coasters with Symlin, and the CGM has been invaluable in helping me determine the correct dosage.
Back to more holiday activities; with 3 kids and everything else going on, life is swirling around.
Monday, December 18, 2006
Forgot to post this, things have been crazy since Thanksgiving getting ready for all of the holidays. I am happy to report that after 3 months of DexCom, I have dropped my HBA1C a full point. I initially purchased the DexCom to help me lower my HBA1C after losing focus on my diabetes, and to help me prevent hypos.
Wednesday, November 08, 2006
A *BAD* couple of D days for me.
I went to work out at the gym, and accidentally pulled my infusion set out. I replaced the set with one of the straight-in infusion sets(inset), and was in the 200s all day, haven't done that for awhile.
BS's continued to rise so I took several injections at work. Still in the 200s at home, pulled my infusion set, and you guessed it, that straight in cannula was bent at a 90 degree angle; hence little or no insulin delivery, hence the 200s.
I inserted one of the angled sets I have, the comfort short (which I
*WILL* be going back to), and BS's returned to normal, except that my DexCom receiver showed lots of *NOISE* in the morning, with readings all over the place.
I have been getting 10+ days recently; this is only one of a few sensors that have crapped out after 4 days.
No time to replace the sensor this morning, forgot to bring an extra sensor to work, so I'm back on lots of fingersticks for the first time in awhile. I'll probably end up testing every 2 hours or so depending on how busy I am at work, and then I'll insert a new sensor at home.
I've adjusted my Basal rates fairly well while on the DexCom CGMS, so I'm at 108; it will be interesting to see how I make out while I'm NAKED without my sensor the rest of my work day.
Posted by Gary at 8:02 AM
Tuesday, November 07, 2006
1. For a midnight snack, I used to occasionally eat hotdogs without cooking them: my wife thought it was disgusting, but hey- aren't they already cooked? I've stopped that 'disgusting' habit ever since I started going to the gym a year ago. What's really in a hotdog, anyway?
2. I used to operate a nuclear reactor on a U.S. Navy ship 25 years ago. I don't have most of my hair any longer, but I was able to father 3 kids.
3. My favorite class in high school was creative writing (I'm an engineer; hey did you know that engineers CAN write?).
4. After 20+ years of using a PC running Windoze, I finally upgraded to a MacBook Pro Duo, so now I can run Mac OS and Windoze. I know, I know, why bother to run Windoze on a MAC? Yech!
5. I want to sell my house and live in an RV, touring the country when I retire. "Yeah, Right!" says my other half.
Now I'll peruse the Diabetes OC for 5 more D's to tag.
Posted by Gary at 8:01 PM
So I'm driving to work this morning, I'm almost there, and I get this call from my wife:
"Your pump is sitting on a pile of clothes in the bathroom, are you coming home to get it?"
Oh Sxxx! What a way to start a Monday morning. I stay up late watching the Pats/Colts game, and look what happens; my mind turns to milk toast. No way I'm going to drive one hour in the opposite direction to get my pump. Fortunately, I've got backup insulin and syringes in my diabetes kit, along with my DexCom.
So far I've had to skip breakfast, and I have 4 used syringes on my desk. At least my BS hasn't gone above 200 this morning. I'm getting really hungry since it's lunchtime and a little weak, but I'm still too high to eat at BS = 171. The trend is headed downward; extrapolating the graph, I should be around 120 in another hour or so, and then I can eat.
If I didn't have CGMS, would I have turned around to get my pump? Probably ... I just don't have the time to do a fingerstick test every half-hour or so.
Posted by Gary at 5:56 PM
Monday, November 06, 2006
So I'm driving to work this morning, I'm almost there, and I get this
call from my wife:
"Your pump is sitting on a pile of clothes in the bathroom, are you
coming home to get it?"
Oh Sxxx! What a way to start a Monday morning. I stay up late
watching the Pats/Colts game, and look what happens; my mind turns to
milk toast. No way I'm going to drive one hour in the opposite
direction to get my pump. Fortunately, I've got backup insulin and
syringes in my diabetes kit, along with my DexCom.
So far I've had to skip breakfast, and I have 4 used syringes on my
desk. At least my BS hasn't gone above 200 this morning. I'm getting
really hungry since it's lunchtime and a little weak, but I'm still
too high to eat at BS = 171. The trend is headed downward;
extrapolating the graph, I should be around 120 in another hour or so,
and then I can eat.
If I didn't have CGMS, would I have turned around to get my pump?
Probably ... I just don't have the time to do a fingerstick test every
half-hour or so.
Posted by Gary at 12:54 PM
Thursday, October 12, 2006
I've been away a few days, so haven't had a chance to blog. My family and I traveled to New Jersey over the long Columbus Day weekend to see Godspell at the Paper Mill Playhouse. Excellent show, updated for the current times. Rap wasn't around in the 70s. I was concerned during the show that my DexCom CGMS might sound off, but fortunately, it didn't! I wish they'd add a vibrate all feature, similar to my Verizon Razr phone. I'm paranoid about it going off in church, the theater, or a movie. So far, it hasn't happened, but it's only a matter of time.
Anyway, took a chance this past weekend and didn't bring an extra sensor. The sensor lasted the whole long weekend in addition to a week before that, for a total of 11 days inserted in my stomach. After removing the sensor, I saw only a tiny red bump, the same size and shape that I've seen after leaving the sensor in for 3 days. There was only a very mild pink area where the adhesive was; very encouraging; averaging that sensor cost over 11 days, that's less than $3.50 a day, very reasonable, at least for my pocketbook.
I think I'm going to change the sensors a max of every 10 days, even if some others have had them in longer. The last couple of days I thought that the sensor values were 50 or so points off from the Ultra meter, even after frequent calibration.
Only a month left until my next HBA1C; I've got my fingers crossed that this CGMS is really going to help me; I've modified my behaviors a great deal because of the CGMS; I'll be VERY DISAPPOINTED if I don't get some decent results!
Posted by Gary at 8:00 PM
Monday, October 02, 2006
I was Dx'd a type 1 diabetic late in life several years ago at age 39, so I've had at least 35 years of enjoying any cereal that I wanted to eat: Cap'n Crunch, Wheaties, Cheerios, Rice Krispies, Boo-berry, Franken-berry, etc., etc.
As I grew older, I settled on the healthier cereals, enjoying wheaties, and my all-time favorite, Raisin Bran. The sugar-bomb cereal no longer appealed to my palette, and I was no longer into Saturday morning cartoons, 3 feet away from the TV, stuffing my face with this un-healthy junk. When I was a kid, we weren't as health conscious as we are now. My dad, a type 1 diabetic from age 19, would also have wheaties or cheerios, sprinkled with a healthy dose of the most disgusting sweetener that I ever tasted, sweet-n-low (forgive me if you enjoy the stuff, but I could never get past the after-taste). He never had the tools we have now; if he did, and saw the cereal response pictured here, perhaps he would have skipped the cereal.
I tried my best to limit the post-prandial spike- it still shot up to around 280 as you can see. This despite a bolus 20 minutes prior to eating, and starting with my BG at 94. I limited the carbs to about 37 grams, using light soy milk with only 5 grams of CHO for an 8 oz. serving. It took almost 4 hours to get my BS back to 100!
I'm not giving up just yet. I'm going to add some low-carb peanut butter and crackers to the meal to delay the carb absorption. I feel that I deserve at least 50 grams of carbs per meal. I'm not willing to go the low carb route; heck I went on the pump so I could eat somewhat like I did prior to my diagnosis, I'm hoping that with some more tweaking, I can enjoy my Raisin Bran.
Posted by Gary at 5:49 PM
Sunday, October 01, 2006
To follow-up with my recent post on the CGMS dogfight cited in the Reuters article by Julie Steenhuysen, I'd like to direct you to another blogger that did an excellent piece on the same story. Please checkout Amy Tenderich's Article on DiabetesMine.
Amy serves up some enticing tidbits on what J&J is up to in their future CGMS due out in a couple of years, including a 15 minute warm-up time, no fingerstick calibrations, and improved accuracy.
Amy is a type 1 diabetic, a DexCom user, and a prolific diabetes journalist, who received the LillyforLife Achievement Award for Diabetes Journalism, and the 2006 Diabetes O.C. best blog award. Amy's site is a must read for any diabetic, including current and future CGMS users.
Posted by Gary at 9:03 PM
Saturday, September 30, 2006
"Dogfight" in CGMS. According to a Reuters September 29th article by Julie Steenhuysen, this is what some analysts who monitor the Diabetes medical device market are saying about CGMS. I don't mind a good dogfight in CGMS; the more competition, the better for we type 1 diabetics, and type 2 as well: we really need these tools and the insurance industry needs to understand that; right now, they just don't get the message; their bottom line is: money, money, and more money. The more players in the market, and the more studies conducted that show the benefits of CGMS, the quicker the insurance companies will respond.
Dogfight over Features
The president of Abbott's diabetes unit, Ed Fiorentino, says:
"Better accuracy and longer-wearing sensors -- five days with the Abbott product vs. three days with the Medtronic and DexCom devices -- will give Abbott an edge."
Mr. Fiorentino may be right on when it comes to accuracy, though with DexCom I'm doing pretty well with accuracy compared to my somewhat accurate fingersticks. As far as sensor life goes, 3-days wear time is so far a minimum for me with DexCom. On the accuracy and non-calibration requirement (if you choose to use the Navigagor off-label), Abbott leapfrogs ahead of DexCom, if what abbott claims is true about completed studies and studies almost completed. DexCom had better get cooking on some new features, and stay away from the vaporware type of announcements we've seen with other companies, it's coming, it's coming, really, it is...So we've got DexCom, MiniMed, Navigator, and now J&J jumping into the CGMS market. I am psyched!!!
Posted by Gary at 2:49 PM
Got my new charger today after my latest accident with my CGMS gadgetry. It's not listed on the DexCom on-line store, but the charger costs $25, plus $5 for shipping, which is the going rate for these things.
I do try to be careful; my wife accuses me of 'sucking all of the fun out of a room', because I'm constantly pointing out accidents waiting to happen, which I'm sure all of you parents out there can relate to. Most of the time I see the accident before it happens; I just have to hold my tongue of course, since my kids need to learn from their behaviors. Now I need to learn from my behavior and stop plugging things in where people can trip over them.
Anyway, I'm off on a tangent here; I also got my second box of sensors, so to date, with two months of DexCom usage, I'm out of pocket about $350. Oops, make that around $400, if you include shipping.
I'm trying to calculate out-of-pocket expenses for next year so that I can at least re-coup some cost from my medical savings account. Might change if I decide to switch CGMS, we'll see ...
Posted by Gary at 1:56 PM
Thursday, September 28, 2006
Okay, I've got to get over this obsession with looking at the DexCom receiver all of the time. It's either the constant looking at the receiver that's draining the batteries, or my receiver batteries just doesn't hold a charge. My DexCom rep told me initially that her batteries lasted five days between charges, but my batteries seem to last a paltry day-and-a-half, MAX. Seems like I'm charging it too much. Maybe I should take it off of belt clip and just hide it in my pocket, that way I'll be less tempted to look at the darn thing.
Had a scare last night- because it always seems like I'm charging it, I plugged it in by the dinner table, with the cord running behind me to the receptacle. One of my daughters, helpful and polite that she is, got up to get me a drink of water, and, you guessed it: she tripped over the cord. Luckily, she wasn't hurt; can't say the same for the Dex charger however. It had an odd looking, sickly, angled position on the wall receptacle. Oh S..., another accident. First I drown the receiver, now I've broken the charger.
I carefully pulled it out of the wall socket, and one of the plug prongs drops to the floor. Groan. Fortunately, I used my pliers to insert the plug prong back into the charger, and it seems to charge the Dex, but now I'm afraid to unplug it from the receptacle.
I wonder how much a replacement charger costs? It's not listed for sale on their web site.
Hmmm, what other DexCom component can I break? There's not much left ...
Posted by Gary at 5:45 AM
Tuesday, September 26, 2006
What a day for ups and downs! This morning I headed to the gym for my daily workout, pushed it a little harder than normal, but decided to skip the normal temp basal adjustment, since I've been getting by without it for the moderate workouts. Boy, did I pay for that! I've hit below 70 four times today. Fortunately, Dex warned me with the Dex low alarm before my BGs got too out of hand.
Coupled with skipping the temp bolus, I had whole-wheat raisin bran, and a cup of Soy milk, for a total of 50 grams of carbs. Dex showed me that my BGs shot way, way, up, and I over-corrected since I normally need more insulin when I go up into the 300s. I'm really trying hard to minimize those peaks, using delayed boluses and limiting myself to no more than 50 grams of carbs at a sitting, but those high glycemic foods don't want to cooperate. Thinking more and more about Symilin, ... sigh.
Posted by Gary at 7:25 PM
Sunday, September 24, 2006
I've noticed that I am a noisy person at a night (and no, that doesn't mean that I snore, although my wife will argue that point). With the current DexCom sensor site, I've been having night readings jump all over the place. Below is an example of what a noisy night is; stark contrast between night and day. I tend to toss and turn a lot at night, and I sleep on either my right or left side, and I've located the sensor on my right side. Apparently I am disturbing the sensor so much that I'm generating all of this noise. I haven't had this problem with previous placements.
I'll have to find sites that don't see as much action during the night, which means I'll have to locate the sensor in the stomach area. I don't have a lot of bare areas on my stomach, which means I'll either have to place the sensor pod over the the stomach hair, which makes for a fun time when I remove the pod (ouch), or I'll have to shave the area. Hmmm, maybe some of those bare-chested Baywatch models are going to get some competition!
Posted by Gary at 3:33 PM
Saturday, September 23, 2006
I have a love/hate relationship with my carbs. I love them for their taste, that satisfying, luxurious, feeling I get after ingesting them, and I hate what they do to my sugars.
I used the DexCom software to chart my response to one of my favorite carbs, a Dunkin' Donuts blueberry muffin for breakfast (73g CHO). The GI value is listed as medium for this food, but the DexCom software shows me shooting up well into the 300s, even with a combo/square wave bolus, taken 15 minutes prior to eating the muffin. Is Symlin in my future if I want to enjoy a muffin? Next time I'll go for half a muffin!
I was in a rush for lunch, as usual, so I enjoyed a Smart Ones Fiesta Chicken; not bad tasting, and quick (47 grams CHO). For dinner, we sometimes celebrate Friday night with pizza; this time I opted for a gyro (55g CHO). Total carbs for the day- 175 grams. Wouldn't it be something if the software had an expert system component that could suggest basal rates, carb/ins ratios, correction factors, and insulin sensitivity factors?
Posted by Gary at 10:40 PM
So, how big is the sensor probe that goes under your skin? In case you're concerned about the size, here is a side by side comparison of a 0.5 mm pencil lead, a Paradigm Silhouette insertion needle, a 31 gauge, 5/16" (8mm) syringe needle, and the the sensor probe. The vertical part of the probe goes under your skin, and the horizontal part is attached to the 'sensor pod' that holds the transmitter and the sensor part that connects to the transmitter. You feel a slight pinch as you would with an infusion set insertion, but the probe feels comfortable under the skin, at least for me.
Posted by Gary at 11:34 AM
Friday, September 22, 2006
Thanks to the tip from a fellow CGMS user: she suggested that I try wearing a DexCom shower cover for 3 days, instead of just one day. Two days worked for her, but my friend noted that since I'm a male, I will probably spend less time in the shower , so 3 days might just work.
So ..., the results are in, drumroll please... Yes I was able to get 3 showers out of one cover, so now my shower cover costs are reduced from 60 cents a shower to 20 cents a shower , or if I take one shower a day, just six dollars a month. A small price to pay for not getting the Sensor wet so I can get good readings after a shower.
Thanks for the tip: Any CGMS users out there with money-saving tips, please send them my way.
By the way, my friend is going to try that wonderful product with 10,000 uses... Saran Wrap!
Posted by Gary at 5:43 PM
Thursday, September 21, 2006
Okay, here we have another type of screen shot that the DexCom software will give you. You can choose to have up to 7 days displayed, but that's too much data to display here, so I just chose one day. The blue circles are sensor BGs, and the red stars are uploaded values from the ultra meter. Those values are used to calibrate the DexCom, and to check to make sure it's tracking along with the ultra BG values. The largest delta is between the first red star to the right, over from the mg/dl Y-axis. The delta is 17 points, which I consider acceptable.
What I can't explain, is the drop in BG from 3:11 am to 3:21 am. The graph shows that I dropped 59 points in 10 minutes, an obvious hiccup. I do a lot of tossing and turning at night, and the sensor is installed on my side, I'm wondering if I somehow disturbed it and the transmitter in such a manner as to cause this glitch.
Anyhow, you can determine from the graph when my meals occured, how high my post-prandial spikes went, how much time I spent between the lower and upper limits of 80 and 200, respectively, and that I need to tune-up my basal rates.
Posted by Gary at 12:03 PM
Ok, so I was somewhat concerned about leaving the sensor in the site for 10 days, given that you're only supposed to do it for 3, and a trial is underway to get FDA approval for 7, but I tried it anyway, risk taker that I am. I will probably end up using them for 7 - 10 days, but no longer. I know some others that are using the same sensor past 10 days, but I'm not going that far.
Anyway, the site looked beautiful: no irritation, only a very slight, almost undetectable, faint hint of redness. The puncture site was almost invisible: except for the tape residue, I would not have known that a sensor was ever there. Looked a lot better than some of my infusion sites after 3 days. I put some Aquaphor over the area to moisturize the skin, inserted a new sensor, and am on my way, probably 7 days this time, although I've had a couple of sensors stop working after 2 days.
Another tip about starting a new sensor session: start it in the MORNING, not the evening, so you can deal with the inaccuracies while you're awake, and not trying to sleep. The new sensor was flaky for a few hours, and woke me up with 2 low alarms, whereas the ultra read 101, and 105.
Posted by Gary at 7:43 AM
DexCom delivered the software via priority overnight yesterday. I installed it last night, uploaded my data (the last 7 days are supported), and played around with it a little.
I'm thinking I'm going to get some valuable data out of this software, although the GUI (Graphical User Interface), looks outdated; but hey, I had to complain about something. I emailed the patient files to work, and I'll see if I can open them with the DexCom software installed at work. Would be nice if I could email the data to my doc, but of course Harvard Vanguard has this nifty little system for email that does not allow for attachments. I'm sure the I.T. police are responsible for that one, wouldn't want to allow some sneaky virus to get in there and shut down their system. I'll just do it the old fashioned way, print out the reports and then FAX them in. I'm sure my endo will be delighted to receive them. I'll probably mark up the data to explain what a 'shower spike' is, amongst other things.
I plan to post some screen shots here in the future, but first, more playing around with the software. It looks exactly like the software that my DexCom rep had, as it allows multiple patient entries, similarly to other meter software packages. It seems as if all of the diabetes software packages have these quirky looking somewhat outdated GUIs, but I'd rather have the data than some slick GUI where the most important simple features don't seem to work (a.k.a. Microsoft).
Posted by Gary at 7:33 AM
Wednesday, September 20, 2006
DexCom says to use a sensor no longer than 3 days, and that they're working on getting FDA approval for a 7-day sensor. I've been browsing the internet to find out what others are experiencing for sensor life. One CGMS user I know seems to get a couple of weeks out of one sensor. That seemed a little extreme to me, and when I mentioned it to my DexCom rep, she said that 2 weeks was way to long to leave a sensor in.
I decided to see how long I could go with one sensor, and to date, my current sensor has been in for 10 days. I'm sure I could go longer, but I'm going to pull the plug on it tonight. The sensor seems to get more accurate after a couple of days, and the past few days, this sensor has been right on target, except of course, for rapidly changing BGs.
Went to the eye doctor for my annual dialated pupil exam last night, and got some good news; no sign of any retinopathy or other damage. I'm concerned about that, as my sister has severe diabetic retinopathy, as did my father. After the eye exam, I played softball in our backyard with my 3 girls: boy did I look like a real geek with those wrap-around glasses on, or so my daughters tell me.
So far it has been about 4 weeks on the DexCom CGMS, and I'm finally getting used to it, and also getting used to the fact that I don't need to look at all of the time! Still no word from DexCom on when they're sending me my software. They said I would get an email when it shipped, but nothing yet.
BTW, tried to wear the shower cover for an extra day on the suggestion of a CGMS user friend, and it worked! She suggested that since I was male, I might try to get three days out of a cover. I'll give that a shot, too.
On another blog technical note, I've been trying to post to other OC blogs, but since I switched to the *beta* template, I'm not allowed to. Once again, I pay the price for being an early adopter
Posted by Gary at 12:09 PM
Sunday, September 17, 2006
I'm doing less fingersticks now that I'm becoming more comfortable with CGMS. I don't think I'm going to go below 8 sticks a day, assuming this would be a typical day. I would add a couple on top of this for additional calibration requirements and other variables:
Stick 1: calibration in the morning/Pre-Prandial prior to breakfast
Stick 2: Post-Prandial Breakfast
Stick 3: Pre-Prandial Lunch
Stick 4: Post-Prandial Lunch
Stick 5: Pre-Prandial Dinner
Stick 7: Post-Prandial Dinner
Stick 8: Bed Time BG
This is my fingerstick frequency over the last few days, averaging to a little more than 8 per day:
|DATE||Number of Fingersticks|
|Tuesday, September 12||8|
|Wednesday, September 13||7|
|Thursday, September 14||11|
|Friday, September 15||11|
|Saturday, September 16||6|
Posted by Gary at 8:20 AM
Friday, September 15, 2006
How much does it cost me for annual out-of-pocket expenses for CGMS? Here is what I estimate CGMS will cost me in the next year, provided I can get 7 days out of one sensor. Note that the figures vary by individual; some folks don't use shower covers, and some may get more or less wear-time on a sensor. Question for the insurance companies: How much does it cost for an ER hospital visit to treat one episode of extreme hypoglycemia? $5000, $10,000? Do the math: CGMS pays for itself if only ONE ER visit is eliminated.
|DexCom STS Receiver||$550|
|DexCom Transmitter, 2/yr||$500|
|Shower Covers, 1/day||$225|
|Total Annual Costs||$3001|
Posted by Gary at 1:16 PM
Wednesday, September 13, 2006
Finally, the DexCom Software is listed in their on-line store, and I should be getting it in a couple of days. It will be nice to look at 7 days worth of data at once, instead of having to take pictures of the receiver to analyze the data! I’m looking forward to working with my endo; I won't be able to send the reports via email as their system doesn't accept attachments, but at least I will be able to print out and FAX the reports to her.
Here are some of the software features they list on the link, in addition to saving files and printing reports:
- View Glucose Trend Information (up to 7 days)
- Display up to 7 days of Glucose data
- View Modal Day Information (up to 7 days)where up to 7 days of your glucose data can be displayed at once
- Zoom in on Glucose Trend Graphs (down to 4 hours)
- You can zoom in up to 4 hour display for more detailed glucose trend in Glucose Trend Graphs
Posted by Gary at 8:48 AM
Sunday, September 10, 2006
I see this question occasionally. Since it's only my 3rd week on the sytstem, I find that I am testing more frequently than before I went on CGMS, because (1) I make mistakes, and (2) I also need to get more comfortable with Continuous Glucose Monitoring- sometimes the DexCom can be off up to 40 points from the fingerstick test (I've had successive fingersticks off 40 points from eachother, too, on different hands, go figure that one out), so you MUST do a confirmatory test before you make treatment decisions. CGMS does not replace fingerstick tests, although I have read about some users that are doing this. I do not get that comfort level from CGMS. Here is a sample of my fingerstick frequency over the last 10 days. I'm hoping to cut this figure in half after a couple of months or so:
|DATE||Number of Fingersticks|
|Thursday, August 31||15|
|Friday, September 1||10|
|Saturday, September 2||13|
|Sunday, September 3||14|
|Monday, September 4||16|
|Tuesday, September 5||13|
|Wednesday, September 6||12|
|Thursday, September 7||13|
|Friday, September 8||17|
|Saturday, September 9||17|
Posted by Gary at 1:42 PM
Thursday, September 07, 2006
It was great to receive my NEW DexCom receiver in the mail, I almost felt naked without the trend data the past couple of days. Nice job, DexCom with the one day service delivery, got a new one as I have in the past with pumps that needed to be replaced.
I've switched sides today; the new sensor is on my left instead of my right side, but no noticeable differences: DexCom is still tracking my fingerstick tests rather well.
Interestingly enough, I'm reminded of how inaccurate fingerstick meters are: when I calibrated the DexCom this morning (with 2 successive fingersticks), the Ultra read 181 on one finger of my left hand, and 207 on one finger of the right hand, a 26 point difference! I've also experienced 40 POINT DIFFERENCES from successive fingerstick tests on fingers of different hands. Kind of makes you wonder about folks complaining about a 20 point difference between a CGMS reading and their fingerstick reading from their trusty blood glucose meter. It's important to remember that cheap home test meters don't have the accuracy of lab instruments, and that when it comes to CGMS, trend analysis is key, in addition to the single point value given by the CGMS and the blood glucose meter.
Posted by Gary at 12:52 PM
Wednesday, September 06, 2006
Nice way to end Labor Day *NOT*:
My 8 year-old daugther convinced me to jump into the frigid water on
the last day of the pool being open; of course I wasn't planning to
swim, and my trusty Dexcom receiver went in with me.
You guessed it, the Dexcom receiver is toast. I thought about trying to dry it out, but the holes are sealed with epoxy, so there's no way to get at it without drilling through the epoxy and getting the screws out. Would probably have voided the warranty anyway.
Fortunately, DexCom has a one time only replacement policy, so I saved $550 bucks. They're shipped it out yesterday, and it will arrive today. Now that's GOOD customer service!
Posted by Gary at 1:03 PM
So it looks like what we families with type 1 diabetes have long suspected is true: There is a genetic link, gene x, that increases the likelihood of a person developing type 1 diabetes. With the strong type 1 history of family (my sister, and I have it, my dad had it but is now deceased) it really makes me think about getting my own 3 children tested. The dilemma is, even if they have the gene marker and have an 80% chance of developing type 1, there is no way to prevent it. There is work underway to develop a vaccine, but until that time, the question is whether or not to do gene/antibody testing on my children. I'm already keeping a close eye on them to look for signs; I was 39 when I developed type 1, and my father and sister both developed it at 19. I'm praying for a vaccine soon, as type 1 could develop in my children anytime.
DenverPost.com - CU finds genetic clues to children's diabetes risk: "CU finds genetic clues to children's diabetes risk
By Karen Augé
Denver Post Staff Writer
University of Colorado researchers have discovered new genetic markers to identify children at high risk of developing diabetes.
In a 13-year study, following 30,000 newborn babies, researchers at the Barbara Davis Center for Juvenile Diabetes found genetic differences that increase three to four times the chances that a child will develop Type 1 diabetes, in which the body cannot produce insulin.
The researchers did not identify the exact gene - which they are calling gene X. "
Posted by Gary at 12:13 PM
Monday, September 04, 2006
This overnight basal test was to confirm a previous test run to confirm my overnight profile. The test was successful, with two annoying exeptions:
Dexcom STS woke me up with a low alarm (DexCom alarm set to 80) at 5 am (ultra = 136). I re-calibrated, went back to sleep, and an hour later, received another low alarm (ultra = 132). The low alarms occurred even though DexCom was showing my BG trend was essentially flat during the evening, hovering around 100 +/- 15. As can be seen from the following nine-hour trend screen. Note the false noise dipping below the dashed line in the middle of the screen(the low alarms), circled in red. I have no idea what caused this. This particular sensor is on day 8 Ignore the 228 BG reading, that's the dawn phenomenon I'm now working to correct:
Normally I wouldn't mind a false low at this hour since I'm an early riser during the week, but hey, it's labor day weekend and I wanted to sleep in a little later.
Anyway, I re-calibrated a second time, and DexCom is now tracking my dawn phenomenon quite well. I consider the test successful since it confirmed my new overnight basal rate, although I did wake up a couple of times. I have my low alarm set at 80, perhaps I need to consider setting it to 70 if this pattern is too frequent, although these are the first false lows I've encountered overnight. Back to some more experimenting!
Posted by Gary at 8:14 AM
Sunday, September 03, 2006
This article appeared in the August 29, 2006 edition of the New York Times, by Mr. Dan Hurley. Mr. Hurley, a diabetic for 30 years, recounted several episodes of severe hypoglycemia, including a recent episode, in which he almost didn't wake up. The article focuses mainly on the advantages of catching lows. Here's a snippet from the article and the link to it:
The Beep of the Sensor, the Thrill of Control - New York Times: "The main problem was that the sensor was simply not as accurate as a blood-glucose tester. MiniMed’s studies show the sensor’s accuracy can be off by as much as 18 percent. Another sensor, just approved by the F.D.A. and made by DexCom, is said by some researchers to be a bit more accurate, as is a third device, from Abbot, which has not yet been approved. But none are as accurate as a standard blood-sugar test."
Posted by Gary at 8:51 AM
Saturday, September 02, 2006
I've always had a tough time with the overnight basal test. Fasting and then waking up at various times during the night to test my BGs were definitely some of my least favorite things to do.
So, enter the Dexcom, with the promise of NOT having to disturb a good nights rest for several nights. I mean, getting the overnight basal rate down correctly one night is a challenge, and then they want you to do it AGAIN.I've rarely been successfuly at it, and never knew what really happened with my BGs overnight.
After visiting my endo on Wednesday, she suggested a small change per the standard recommendation of reducing my overnight rate by 0.1 u/h starting at 9 pm, in order to avoid the lows that Dex had caught for a couple of nights. I did just that, and had mostly flat BG curve in the evening, awaking with a 150, which was still within the 30 point spread outlined in Pumping Insulin (4th Ed.).
Now I'll try to confirm it with another test, that is if I can avoid that tempting late night snack ;>
Posted by Gary at 9:22 AM
Wednesday, August 30, 2006
Last night I met up with my Dexcom rep to download the Dexcom so that my endo could look at the data at my appointment the next day. This might be the last time that I have to have someone else download my meter, as my order was put in today for the new Windows software.
I hope the patient software is as good as the software the Dex Rep had. That software allowed you to hover over any point and look at the value, date/time stamp, and also overlay multiple days on top of one another, makes it a lot easier to analyze the trends rather than rely on digital shots of the graphs as I'm now doing.
Dexcom said the software would ship after Labor Day, so hopefully I will have it in the next month or so.
I'm still trying to figure out what to do about the annoying 'shower spikes'. I don't want to put those shower covers on every time I want to take a shower. I just want to minimize the time that the shower spikes keep me from getting useful data. Hint: Do not try and re-calibrate while the transmitter/sensor is wet; I tried that, and as others have confirmed, it pushes subsequent results lower, so you think you are low when you are really okay.
I've tried drying the transmitter/sensor immediately after a shower, but I get 'High' on the display, and today it was for 2 - 3 hours, so I decided to start a new sensor session, and both the Ultra and the Dex have been in close agreement for several hours. Oh well, tomorrow is another day and more trial and error with the shower spikes.
Posted by Gary at 8:06 PM
Tuesday, August 29, 2006
Saturday, August 26, 2006
Took the Dexcom to the gym today to run an interference test, confirming what Insulin Factor has observed: Dexcom does not like my polar heart rate monitor. After attaching my heart rate monitor strap, the Dexcom antenna icon went bye bye, and didn't return until after my workout. The previous day when I used the treadmill, there was no interference from that piece of equipment; I'm going to try it while I use the elliptical trainer next week. The exercise equipment in our gym is grouped closely toghether, and sometimes the built in heart rate monitors don't work properly due to their close proximity to eachother, so I'm wondering what effect if any, the ellipticals will have on the Dexcom. I probably won't wear the Dex during workouts when I use the heart rate monitor once I've profiled my trends during the type of exercise.
Dexcom Transmitter in the Shower
As I've been told, Dex transmitter does NOT like to get wet! My post shower readings shot up to over 400 after a shower. I don't want to use the shower covers to protect it, and I don't really mind if I don't know what my readings are for awhile after a shower. An hour after the shower with Dex still reading high, I decided to recalibrate (a simple matter of connecting a cable to your one-touch ultra), confirming the data sucessfully transfers, and then waiting until the Dexcom data comes back into agreement with your meter an hour or so after recalibration. No big deal!
Dexcom STS Only Works With The Older OneTouch Ultra Meter
Not too much of a problem for me, though I do miss my UltraSmart® meter. At first I thought that you could just use the OneTouch® Ultra® for calibration and then the UltraSmart the rest of the day; I was informed that Dexcom, however has to learn each meter that it connects to, and that it uses as much data as you want to give it in it's algorithm to get good agreement between the Dexcom and the meter. Oh well, I'm becoming addicted to the trend data that the Dexcom gives me, and will have to do without the single point analysis that I get from the UltraSmart until Dexcom is able to work with Lifescan to get the download protocol for the UltraSmart, and the new meters, the OneTouch® Ultra® 2, and the OneTouch® Ultra Mini ™.
Posted by Gary at 8:03 AM
Wednesday, August 23, 2006
The Dexcom has been tracking well in the normal ranges, but near the extremes it was off at least 40 points. To get better tracking during the critical overnight period, I re-calibrated the Dexcom with a few more fingersticks during the 12 hour period, instead of the two that Dexcom suggests. The results overnight were excellent:
Dexcom tracked my ultra within a few points during the overnight and morning period, and as a bonus, it woke me up during the evening with a low that could have gone even lower. I ignored the first alarm at 80, but not the second alarm at 56. I didn't feel low, but as a precaution, I checked with my Ultra, which read 59. This would be very valuable to someone like myself that has some hypo unawareness in the evenings. I treated the low, returned to bed, excited to see what the Dexcom would tell me during the day. I'll save that for tomorrow.
Here's an example of the Dexcom 3 hour trend screen. There's also a one hour and a nine hour screen.
Posted by Gary at 7:26 PM
Tuesday, August 22, 2006
Back at home after installing the sensor and transmitter at Harvard Vanguard. I found out today, 8/22/06, that I am the first Harvard Vanguard patient to use the system. The Dexcom rep told me that they have about 900 patients on it.
As you can tell by the ballcap I'm wearing, I'm a Boston Redsox fan, sticking with the team as usual, despite yesterday's 5 game sweep by the Yankees, the first 5 game sweep of the Sox by the Yankees since 1951. Likewise, I plan to stick with the Dexcom. On this first day I'm just watching how it goes, taking a lot finger sticks to compare. I'll have more to say in the following days on this. Like the Dexcom rep said, remember that the CGMS is at the early stages, akin to black and white TV's and rabbit ears. Remember the horizontal and vertical hold controls you had to constantly adjust to get a stable picture? Now we have HDTV; we've come a long way in a few decades, I just hope and pray it doesn't take as long to develop the HD version of the CGMS. Since I'm an engineer and I like to tinker, I'm sure I'll do a lot of it with the Dexcom.
This is a picture of me wearing the Dexcom on a relatively hairless spot on my abdomen. For men of the hairy variety, she suggested either shaving an area to ensure good adhesion, so instead I opted for the bare skin placement. She advised that putting it on a hairy area might mean poor adhesion and some pain at removal time. Unisolve was recommended to make the removal eaiser, particularly if you've got cave man syndrome.
Posted by Gary at 7:16 PM
Monday, July 24, 2006
I love the summer, and summer vacations, I just wish sometimes that the stars would align and I could get my DEXCOM STS training sooner. I just found out that the DEXCOM rep is on vacation, my CDE is going on vacation, and I am too.
Unfortunately, that means no training until Mid-August at the earliest! I guess I can wait a few more weeks since I've waited this long for the CGMS.
Lately I've been trying to minimize my HYPO episodes at my endo's prompting. Many times I can recognize the lows coming on, but there are times when my BGs drop so rapidly and I am otherwise distracted, that I don't even notice them until I'm already way too low. I'm looking to the CGMS to help me prevent those unexpected HYPO episodes. I've started to make more basal adjustments so that my BGs are higher than they were before. My endo has suggested that Symiln is something that we could add to my regimen to help reduce the elevated BGs, as long as I can reduce the frequency of lows. I'm considering it, although it means shots again- shots are no big deal for me, and the side effect of weight loss induced by Similin isn't such a bad thing. We'll see ...
Posted by Gary at 12:21 PM
Thursday, July 13, 2006
I emailed my endo yesterday asking if she could get the CDE to get with the Dexcom Rep to schedule the training. My guess is that the reps calls went unreturned, perhaps because the CDE thought it was a sales call. My endo says she'll forward the email on to the CDE, so hopefully I'll get trained soon.
I exercise 5 times a week at a gym before work, and my BGs can be really erratic. At 5 am today I was 91, then 56 an hour later (took 12 g CHO), then 66 after my 1 hour treadmill/elliptical workout. I can't wait to see what the Dexcom STS will tell me about my workouts. I graph my BGs 10 times a day, and they can be wildly different from one day to the next, with dramatic highs and lows, with lows induced several hours from sometimes intense workouts. Temp basal rates help, but it is often a SWAG (Super Wild A-- Guess).
I've put in a request for a new sample infusion set, the Orbit 90 from ICU medical. http://www.orbit90.com/ is the web site. I now use the inset infusion set from Unomedical (http://www.infusion-set.com)- nice applicator but I did have a kinking problem with it last week (BGs went to 265, then 290, then 400). I have previously used the silouette when I was on the Paradigm 511; never a kinking problem with the angled infusion set, but I had more scarring and it was a tad bit more painful at thimes than the inset. I do like the Orbit's concept, we'll see how that goes when I get a free sample.
Posted by Gary at 8:49 AM
Wednesday, July 12, 2006
The Dexcom STS has finally arrived! After a long shipping delay, Dexcom overnighted the Dexcom STS to me on Saturday. The Dexcom rep is trying to get a hold of my diabetes educator to arrange training for us (me, diabetes educator, Dexcom Rep).
I hope to go on CGMS soon; even though I've been an insulin pumper since 2000, I still have too many ups and downs despite 'average' BGs below 135. I'd like to level off these bumps. I am under no illusions that the Dex will be as accurate as my One Touch Ultra Smart, but I'm just looking to analyze trends and level off the peaks and valleys. I've read much about the accuracy issues with Dexcom STS, but I'm still willing to jump in and give it a try.
Posted by Gary at 1:45 PM